Bulletins

Thanks to everyone who helped make our 2024 Bleeding Disorders Walk a SUPER event! Click here to check out some great photos from this year’s Walk!

We’re excited to once again host our Fall Family Fun Day on Saturday, October 26 at Wickham Farms for our pediatric bleeding disorder patients and their families. Click here to learn more and to sign up today!

For added convenience, patients at the Center can now securely pay their bills online! Click here to go to our secure online bill page – it’s easy!

Registration for our 2024 Bleeding Disorders Walk is NOW OPEN! we hope you will join us at Genesee Valley Park on Sunday, September 8 for an amazing morning with our regional bleeding disorders community. Click here and visit our Walk page to learn more and register today!

Please consider supporting the Mary M. Gooley Hemophilia Center by giving to the United Way and selecting Donor Choice Organization #156. You can give through a work campaign or donate directly at the United Way of Greater Rochester website (just click this box!). Thanks so much for for your support – caring is in YOUR blood!

The U.S. Hemophilia Treatment Center (HTC) Network is seeking patient feedback via their fourth National HTC Patient Satisfaction Survey. If you received care from the Center in 2023, please click here to learn more and to complete the online survey. Your feedback matters to us!

We hope you can join us for our 2024 Annual Meeting on Friday, June 4 at the I-Square Conference Center. It’s a great opportunity to catch up on what’s going on at the Center. Click here to learn more!

Please note that the Center will be closed for Memorial Day on Monday, May 27. The Center will reopen on Tuesday, May 28. If you would like to speak to an on-call hematologist, please call (585) 399-1717. Thank you.

On April 17, 2024, the global bleeding disorders community will come together to celebrate World Hemophilia Day. Help raise awareness about hemophilia and other inherited bleeding disorders: spread the word and tell your story! Click here to learn more…

The National Bleeding Disorders Foundation names new Chief Executive Officer, Phil Gattone. Click here to learn more!

Local and national scholarships for 2024 are available now for patients and family members within the bleeding disorders community. Click here to learn more and apply!

Please note that the Center will be closed on Monday, September 2 for Labor Day. Our on-call hematologist is available by calling (585) 399-1717.

In an effort to be more inclusive to ALL inheritable bleeding disorders, the National Hemophilia Foundation is now the National Bleeding Disorders Foundation. Click here to learn more about their 75 year history and details on their new rebrand.

Check out our 2022 Annual Report to review learn what’s been happening at the Center this past year.

Sadly, Bob Fox recently passed away. Click here to read about Bob and his unforgotten legacy at the Mary M. Gooley Hemophilia Center…